True Hope Foundation extends RS. 1.21 Crore support to Indore's Anika Sharma in her fight against SMA Type 2

Jun 18, 2026

In a significant step toward supporting children affected by rare diseases, Jodhpur-based True Hope Foundation has extended financial assistance of ₹1.21 crore for the...

Delhi couple resorts to crowdfunding for treatment of their infant suffering from rare genetic disorder

Mar 05, 2021

New Delhi [India], March 6 : A couple living in Delhi's Paschim Vihar are trying to raise Rs 16 crore through crowdfunding to save...

Plea moved in Delhi HC seeking immediate release of rare disease funds for 3-year-old girl's life-saving bone marrow transplant

Jun 02, 2026

A three-year-old girl suffering from LRBA deficiency, a rare genetic disorder affecting the immune system, has approached the Delhi High Court seeking urgent directions...

Delhi HC seeks Centre's response on plea seeking ₹40 lakh rare disease funding for 3-year-old girl's bone marrow transplant

Jun 06, 2026

The Delhi High Court has sought the response of the Union Government on an urgent plea filed on behalf of a three-year-old girl suffering...

"More than 1 lakh children have thalassemia": MoHFW Secy Apurva Chandra

May 09, 2024

International Thalassemia Day is observed on May 8 every year to raise awareness about the genetic disorder.

Father's liver donation gives new lease of life to 1-year-old Uzbek baby suffering from rare genetic liver disorder

Jan 16, 2026

According to the hospital, the baby had developed jaundice soon after birth and required neonatal intensive care. At two months of age, he was...